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Tennessee Secretary of State Tre Hargett
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Board Name: Tennessee Rare Disease Advisory Council
Board ID: 440
Address: , , TN
Phone:
Board Contact:
Contact Phone:
Appointing Authority: Governor, Speaker of the Senate, Speaker of the House of Representatives
TCA: Public CHapter 645 (2020)
Duties: The council shall advise the DUR, the PAC, and other state entities in their review of products or medications for the treatment of rare and orphan diseases, and drugs or biological products within the emerging fields of personalized medicine and non-inheritable gene editing therapeutics
Number of Members: 11
Compensation: Advisory council members receive no compensation for their services on the advisory council
Appropriations:
Meeting Schedule: The advisory council shall meet quarterly, and may meet more often as determined by a majority vote of the advisory council. A member may participate in an advisory council meeting by teleconference up to two (2) times each calendar year
Hours Required: